Help and Support

The early age of onset of many Frontotemporal degeneration (FTD) spectrum disorders and the changes in behavior and language that can accompany them can make living with FTD a challenge for both caregivers and patients.  Patients with FTD can be otherwise young and physically healthy, making behavioral management even harder.  Although most people are sensitive to the memory struggles that accompany a diagnosis of Alzheimer’s disease, the communication difficulties and unusual behaviors found in many forms of FTD can leave caregivers and patients feeling socially isolated and misunderstood.  In this section, we offer suggestions for symptom management as well as resources that will improve coping.