Hosted by the Penn Frontotemporal Degeneration Center
in partnership with The Association for Frontotemporal Degeneration
RESEARCH AMBASSADOR PROGRAM
Thank you to everyone who submitted applications to become an FTD Research Ambassador. Applicants will be notified about next steps in early March, 2024.
The FTD Clinical Research Learning Institute is a one-day virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones to be strong advocates in the field of FTD research by educating them on the clinical research process. Certification as an FTD Research Ambassador provides opportunities to influence and improve the FTD research process. Research Ambassadors will also be able to share information about the research process, and address common misconceptions about research, to patients and caregivers through support groups, conferences, social media, and other platforms. There is no cost for this program.
This virtual program will be held on Tuesday, June 11, 2024, 9:00AM-3:30PM PT / 12:00PM-6:30PM ET. Those who are accepted into the program will be notified in early March. The program agenda will be available on this page in the coming weeks. Topics will include FTD trials, ethics and informed consent, understanding research dissemination, FTD advocacy, and more.
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To receive email updates about this program and other FTDC news and events, you can join our list using the form at the bottom of this page.
Questions? Email us at pennftdc@pennmedicine.upenn.edu