September 28 - October 4, 2026
FTD Awareness Week is a weeklong opportunity for events, activities, and social initiatives to inform communities about FTD.
Organizations such as The Association for Frontotemporal Degeneration (AFTD) and World FTD United come together to provide information and resources for advocation and support in a variety of ways.
Put a Spotlight on FTD
The 2026 FTD Awareness Week campaign 'Put a Spotlight on FTD' asks everyone to join together and put shine a light on frontotemporal degeneration. Within your community and on your social media platforms, we encourage you to put a spotlight on FTD and the ways in which it has impacted your life.
Use the AFTD and World FTD United social media toolkits and resources as you put the spotlight on FTD!
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Stay tuned for videos from Penn FTD Center staff putting a spotlight on FTD!
Join in 3 easy ways!
1. Help raise awareness by changing your profile picture on social media. Use the PDF below for instructions on how to change your profile picture and a link to the available social images.
2. On each day of 2026 World FTD Awareness Week there will be prompts provided by World FTD United which you can share on your social media accounts. Be sure to follow World FTD United and the AFTD on all social platforms!
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Be sure to follow along on the Penn FTD Center social media accounts linked below to see how we are putting the Spotlight on FTD!
3. Share, like, repost the prompts on your favorite social platforms. Comment with your own story or translate for your followers.
2025 World FTD Awareness Week
Penn FTD Center Video Series
Hear from the Penn FTD Center Staff in a series of videos created throughout 2025 FTD Awareness Week!
Gillian Bradley, MSN, CRNP
Penn FTD Center Nurse Practitioner
Laynie Dratch, ScM, CGC
Penn FTD Center Genetic Counselor
Riya Chaturvedi & Alexandra Tavani
Penn FTD Center Clinical Research Coordinators
Emily Xie
Penn FTD Center Clinical Research Project Manager
Lyles Clark, PhD
Penn FTD Center Assistant Director