Resources
The Association for Frontotemporal Degeneration (AFTD)
The Association for Frontotemporal Degeneration (AFTD) offers many support resources for understanding and managing an FTD diagnosis.
CUREPSP
The Penn FTD Center is a CUREPSP Center for Excellence. CUREPSP provides support and educational resources for patients diagnosed with PSP, CBD, or MSA and their loved ones.
FTD Disorders Registry
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Genetic Counseling Resources
Resources for genetic counseling can be found on the Penn FTD Center Genetics webpage linked below.
Home Instead
The Home Instead network is committed to helping seniors and their families cope with the challenges of Alzheimer’s disease or other dementias, and to helping seniors remain in the comfort of their own homes.
Lewy Body Dementia Association
The Penn FTD Center is part of an LBDA multidisciplinary Center for Excellence. The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances.
Lorenzo's House
Caregiver resources with virtual programming including a program specifically for young adult children who have a parent with younger-onset dementia.
Penn FTD Center Events
Information on the Penn FTD Center Annual events.
Penn Memory Center
The Penn Memory Center (PMC) website provides information about research, news, caregiver strategies, education, programs and services, and other caregiver supports.
Other Resources