2025 World FTD Awareness Week
September 21 - September 27
FTD Awareness Week is a weeklong opportunity for events, activities, and social initiatives to inform communities about FTD.
Organizations such as The Association for Frontotemporal Degeneration (AFTD) and World FTD United come together to provide information and resources for advocation and support in a variety of ways.
What If It's FTD?
The campaign aims to raise awareness of the presenting symptoms of FTD and to contrast the disease to other forms of dementia, particularly AD. We want to raise awareness of particular issues associated with FTD, for example, the younger age of onset, the greater carer burden, and the impact for families when FTD is transmitted genetically.
We are asking people living with FTD or at risk of FTD, people caring for someone with FTD, professionals diagnosing or researching the condition, advocates, and anyone else whose life has been touched by FTD to participate in the 2025 FTD Awareness Week campaign.
Penn FTD Center Video Series
Hear from the Penn FTD Center Staff in a series of videos created throughout 2025 FTD Awareness Week!
Gillian Bradley, MSN, CRNP
Penn FTD Center Nurse Practitioner
Laynie Dratch, ScM, CGC
Penn FTD Center Genetic Counselor
Riya Chaturvedi & Alexandra Tavani
Penn FTD Center Clinical Research Coordinators
Emily Xie
Penn FTD Center Clinical Research Project Manager
Lyles Clark, PhD
Penn FTD Center Assistant Director
Join in 3 easy ways!
1. Help raise awareness by changing your profile picture on social media. Use the PDF below for instructions on how to change your profile picture and a link to the available social images.
2. On each day of 2025 World FTD Awareness Week there will be prompts provided by World FTD United which you can share on your social media accounts. Be sure to follow World FTD United and the AFTD on all social platforms!
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The Penn FTD Center will be debuting an informational video series throughout 2025 World FTD Awareness Week. Be sure to follow along on all our social media accounts to see the updates!
3. Share, like, repost the prompts on your favorite social platforms. Comment with your own story or translate for your followers.