We are incredibly excited to announce this year’s Annual Penn FTD Center Caregiver Conference Keynote Speakers, our wonderful friends Rachael Martinez and Maria Kent-Beers, from the Remember Me Podcast! The Remember Me Podcast and Community (https://www.remembermeftd.com/) were created to generate awareness of dementia, specifically FTD. Rachael and Maria were both caregivers for their respective parents with FTD, and their self-proclaimed ‘passion project’ has grown into a large, supportive community of connectedness and understanding where people feel seen and heard.
The Remember Me Podcast consists of episodes featuring the families, caregivers, and loved ones of patients with FTD telling their stories. The format of each podcast episode allows listeners to tag along with these real families as they explore the FTD journey from symptom onset to diagnosis, reflect on the before to hear about who their loved one was before disease, what they loved, and what they accomplished, and then wrap up with what Rachael and Maria have coined accepting the good – looking for the silver linings, even when it feels difficult.
The Penn FTD Center was honored to partner with the Remember Me Podcast for their 8th season and contribute to this supportive community that has become so important to so many care partners! For Season 8, members of the Penn FTD Center team helped weave together information on all aspects of FTD from understanding the symptoms, trajectory of disease, care concerns, research participation, and so much more with the real-life caregiver stories that the Remember Me Podcast helps tell so well.
Season 8 Episodes: Remember Me, in Partnership with the Penn FTD Center
Episode 1: Understanding FTD, with Dr. David Irwin
Episode 2: Understanding Apathy, with Dr. Lauren Massimo
Episode 3: Understanding Aggression and Agitation, with Dr. Jeffrey Maneval
Episode 4: Understanding Ritualistic Behaviors, with Gillian Bradley MSN RN
Episode 5: Understanding Primary Progressive Aphasia, with Dr. Naomi Nevler
Episode 6: Understanding Disinhibition, Impulse Control, and Hypersexuality in FTD with Dr. Katya Rascovsky
Episode 7: Understanding ALS & FTD, with Dr. Corey McMillan
Episode 8: Understanding Loss of Empathy, with Dr. Emma Rhodes
Episode 9: Understanding Hyperorality & Alcohol Use, with Dr. Sara Manning
Episode 10: Understanding Disease Trajectory, with Dr. Lauren Massimo
Episode 11: Understanding Care Concerns: Guardianship, Power of Attorney and More, with Katherine Lietz MSW LSW
Bonus: Understanding Research and Clinical Trials, with Dahlia Kamel MS
Bonus: Understanding Different Types of FTD Research with Drs. David Irwin and Lauren Massimo
Conclusion: Season Finale with Maria & Rachael
For more information on the season 8 episodes, and all other available episodes, please click here. Each episode has an accompanying blog post with helpful resources and more!
The Remember Me Podcast releases new episodes each week on Tuesdays, and can be found on Apple Podcasts, Amazon Music, and Spotify.
~ Dahlia Kamel, MS, Clinical Research Program and Operations Lead
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