The holidays can bring joy, connection, and celebration, but they can also present unique challenges for families supporting a loved one living with frontotemporal dementia (FTD). Changes in routine, crowded gatherings, and sensory overload can quickly become overwhelming. With a bit of planning and a focus on comfort, you can create moments that feel meaningful and manageable for everyone. Here are some practical strategies to help your loved one and your whole family naviga

My name is Samantha Dengel, and I am a Clinical Research Coordinator at the Penn FTD Center. During my time at the Penn FTD Center, I...

A native Midwesterner, Linde is a practicing RN, wife, and mother to two beautiful young daughters. She is also known as a fierce and...

When people ask what I do for a living, I say I work in clinical research, which doesn’t reveal much at first. But when I mention that I...

The Penn FTD Center understands that traveling with your loved one can be difficult. You are entering a new chapter for your family, and...

My name is Mara Bloom, and I am a Clinical Research Coordinator at the University of Pennsylvania Frontotemporal Degeneration Center...

Get to know the Penn FTD Center staff! Learn more this month from Penn FTD Center Clinical Research Coordinator Lauren Bracken in the...

Come prepared for your initial visit! As you work with your Clinical Research Coordinator (CRC) to plan your initial study visit, you may...

The objective of observational research is to observe participants naturally, without any interventions or treatments. Observational...

This September, researchers and clinicians represented the Penn FTD Center at the 14th international conference on frontotemporal...

Cure MAPT FTD is an organization dedicated to awareness, advocacy, and connection for all those affected with a MAPT genetic mutation...

In the Penn Frontotemporal Degeneration Center (Penn FTD Center), we spend a lot of time talking to care-partners about how to keep their...

A patient with FTD was referred for genetic counseling. What can we expect in the genetic counseling visit? A genetic counselor is a...

As a Senior Clinical Research Coordinator with the Penn FTD Center for just over three years, I have had the pleasure of getting to work...

We are incredibly excited to announce this year’s Annual Penn FTD Center Caregiver Conference Keynote Speakers, our wonderful friends...

Many families living with FTD benefit from having help at home from a professional agency. These home care services range from medical...

Some of our patients ask why they need to come in for clinical follow-up appointments. After all, there is no cure for dementia yet, so...